In the following weeks, Dr. Emery, who runs the Fetal Diagnostic and Treatment Center, met with Dr. Lakshmanan Krishnamurti from Children’s Hospital of Pittsburgh of UPMC to discuss my baby’s condition. They worked together on a treatment plan; however, there was no reported case of this ever happening before. It was believed the baby, once born, would need blood transfusions for the rest of his life to survive. I was prepared for the worst. Was my baby going to even live? I stopped buying gifts for him, I stopped preparing his room. I didn’t even want to talk about being pregnant. I wasn’t even looking forward to giving birth in fear of the unknown. I met with Dr. Emery several times a week for appointments, transfusions, and so many ultrasounds I couldn’t even begin to keep track. He was always so positive, supportive, and compassionate.
On Jan. 5, 2012, I delivered Liam Daniel at 34 weeks by C-section after going into the emergency room at Magee with unexpected bleeding. He weighed 6 pounds and with sapphire blue eyes, a cleft chin and tons of dark brown hair was the most handsome little boy I had ever seen! He would stay a week in the neonatal intensive care unit at Children’s where they performed a transfusion, did bone marrow biopsies and many other tests. After his release from the hospital, we had countless appointments with hematology, genetics, GI, cardiology, urology and ophthalmology. We had a home nurse come and visit three times a week. We took Liam to all his appointments and his blood levels kept going up and up, until eventually they were all in normal range! I called Dr. Emery and let him know the good news.